Reversal Of Demyelination in CPM/EPM/ODS
Hello Everyone!
This is it, a new exciting opportunity for possibly reversing the damage caused by Central Pontine Myelinolysis (Osmotic Demyelination Syndrome), and Extra Pontine Myelinolysis.
I was contacted late last week by Dr. James Yarger with ENDECE biopharmaceutical company. He is researching potential drugs to rebuild damaged myelin sheaths due to Multiple Sclerosis, Central Pontine Myelinolysis and Extra Pontine Myelinolysis.
This is the most promising opportunity for those of us who have suffered from CPM/EPM. The company is looking for interested participants to try the drugs.
The potential to regain any of our health is a magnificent prospect.
If you are interested in finding out more, I would highly encourage you to reach out to Dr. Yarger.
You scroll to the bottom of the page to “contact”
Or click: http://endece.com/contact/
I can not guarantee that this will work, but after years of researching CPM/EPM, this is the only option that we have been given for treatment beyond the first few weeks post injury.
If you have any questions, please feel free to reach out to me.
God Bless!
Hyponatremia and Central Pontine Myelinolysis 
This GREAT news! I’ve already read the website and left a comment with my information. Thank you for passing it along.
Joe W
i can’t believe it! For 7 years I’ve been hoping for this. If this is fake it is a cruel thing to do to people with CPM.
Nope- it’s not fake. Though, I don’t have information about the drug itself. As you know, we have to be excited for any new developments.
I left a comment for my husband and am excited to hear back. Have any of you gotten a response?
Suzanne S
Hi, I spoke with them in person prior to my posting this. I haven’t heard any feedback from anyone else though.
Hello Cathy,
I wish I had read your blog when my daughter Lucie was still alive.
It’s excellent what you have done here. Thank you!
I hope you go on to study medicine and I wish more doctors were more like you.
I believe Lucie may have developed CPM in December 2011.
She was admitted delirious to the psychiatric short stay unit at Vancouver General Hospital with a sodium level of 120 and abrasions to her forehead, hips and chin after falling face first on the pavement (+ “found DOWN in ambulance bay” + found collapsed on boulevard)
I was not allowed to stay with her and the psychiatrist never returned my calls.
EHS had sectioned her, then her admission was changed to voluntary when they discovered hyponatremia.
Sodium corrected to 135 (no collateral taken, no imaging) and she was discharged “perplexed” 48 hours later with a Rx for Lexapro, a mood stabilizer and Dexedrine.
The psychiatrist thought she was bi-polar and had ADHD. She wasn’t and she did not.
She was suffering neurologic symptoms and had been for 3 months.
I was wondering if you could give me your opinion. I believe Lucie may have developed CPM Dec 2011.
Should I post Lucie’s full story? Yes? Where is the right place?
Thanks so much Cathy!
God bless!
Hi-
My name is Sarah. 😁
I do allow people to post their stories here, but you would need to send it to me via email, and I would post it for you.
I would recommend getting medical records and also contact an attorney.
You can also try to post your story locally, but you really need to get the medical records and figure out everything that happened first.
I’m so sorry for your loss. It is one of the most distressing things because there are so many treatment options that have helped.
Please let me know if there is more that I can assist with.
Hi Sarah,
Thank you.
I just finished reading my daughter’s medical records.
She died April 3, 2017.
There was gross medical negligence, diagnostic delay, treatment delay, obstinate treatment refusal, +++ mis-diagnosis and errors in her history taking.
I wish that I had helped her to obtain a settlement in 2012.
She would be alive now if I had.
I’ve written a summary that I could send you.
I sent the summary to a few lawyers but I don’t have a case of either medical negligence or wrongful death. They said that a child’s life has no monetary value. Only if she had children or dependents and there was a loss of income support to them due to her death. There is no compensation for pain or suffering caused to parents of adult children.
I guess I just want her doctors to understand what happened to her and how they failed her, so it doesn’t happen again to someone else.
What is your email address?
Thanks so much,
Nicky
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