Today is one of those days. I’m actually not sure what I mean by that. It just sounded good 🙂
I’m kind of going to create this section to document some of the things that have been happening to me. I guess a journal of sorts.
It really isn’t going to contain a lot of relevant facts regarding hyponatremia, CPM/EPM, etc, but what I’ve been experiencing with it. I hope you will be able to gain some of understanding how this disorder effects your daily life.
Let me just stress, compared to some, my issues are absolutely minimal. I watched a video on You Tube yesterday of a person who has CPM, and she has the complete body paralysis. It was pretty horrific. I pray none of my readers ever experience this. I pray that if you’re reading and sharing my blog that we can avoid this happening in other people.
So, it’s only 2pm where I live. I’ve only been up for about 3 hours. Yeah, I know. I really did sleep until 11:30 am. However, I went to sleep at 3am, so it’s really not that bad.
I’m able to work part time, but my employer adjusts my hours. This week my hours are later, and this has caused my sleep schedule to shift a bit.
I normally can’t make it through a day without a HUGE iced tea. I don’t drink coffee, so tea is my main to only source of caffeine. However, if I’m working late, and I drink the tea to make it through my four or five hour shift, I have a hard time falling asleep after that, and that’s what happened last night.
So, last night before I went off to slumber, I had reminded myself three times that I would not have to go to have my labs this morning as planned, and that I would have to cancel that alarm this morning. I also reminded myself through out yesterday that I was going to have to go to the doctor to have the heart monitor attached. (have to do a 48 hour heart study).
At 7 am, guess what woke me? Yep, it was my alarm for my labs. Did I forget to cancel the alarm? Yep.
Turned that off and went back to sleep.
What woke me up at 11:30am? My alarm telling me that I had an appointment at 12:30.
I was completely surprised by this. I did not remember it. I did not remember, remembering it through out the day yesterday. Oh, and that reminds me, I have to have it reset tomorrow at the same time. And the lab work that I didn’t get done this morning, I have to do around 7 am before I have the monitor replaced.
UGH. I’m going to post it now, I will probably forget it and remember it a dozen times today, but forget it again by tomorrow morning. That’s just the way things go.
One thing I noticed this morning as soon as I woke up and rolled over to turn off my alarm, my hand was shaking. It was that lovely, can’t hold my hand still and trying to press the right keys on my cell alarm morning.
So, one of my neurologists suspected that my tremors, weren’t related to EPM, but were related to caffeine. I guess since I hadn’t had caffeine at that point, he would suggest they were from caffeine withdraw. 😉
It’s a beautiful afternoon in Dayton at this point in time. It’s gorgeous and sunny. My sinuses aren’t killing me. Besides the shakes, the memory, and the numbness in my hands and feet, I feel completely normal.
I won’t publish this post until later because I want to kind of give you a “full” account of what a good day is for me.
Ok, so it’s later.
Did anything else happen?
I had some issues with aspiration. Apparently, I can no longer walk and drink at the same time. Truly, if I’m in motion, drinking is an issue, and I aspirate.
I had to work tonight, and after 2 hours, my fingers became stiff. It hurt to type, but it wasn’t unbearable. They are still stiff and achy. My legs are also stiff because I had to sit for so long at work.
I had issues with memory, but that’s becoming the normal.
There you go. That’s a pretty good day for me. Tremors, memory issues, choking, stiffness and pain.
I hope that one day, more people who have cpm/epm will post some of their symptoms. (hint 😉 )